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Welcome

Description

24 Hours for Hank is a non-profit foundation that raises Cystinosis research money and Cystinosis awareness.

Keywords

Cystinosis, Fanconi Syndrome, Hank Sturgis, Henry Sturgis

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  Recently in the news!  
Latest News & Events 

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April 30th, 3013 - FDA APPROVES "PROCYSBI" slow release medication. 
"FDA approves cysteamine HCL eye drops for treatment of corneal crystals in cystinosis patients!" - October 18, 2012
"Cystinosis Research Foundation Awards $2 Million in 2011 for Grants to Find a Cure for Deadly, Genetic Disease"-Market Watch, Wall Street Journal, January 5, 2012

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ride september friends fda 30-31 cure 2012 schweitzer cells fundraiser money raise 22-23 diseases approves news people genetic schweitzer january march idaho » hour

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fda 30-31 cure 2012 schweitzer cells fundraiser money raise 22-23 diseases approves news people genetic schweitzer january march idaho » hour corneal treatment drops hcl courtesy crystals awards october patients rebecca cysteamine grants slow photo recently april release 30th procysbi all-star medication holland resort 2010 schweitzer 2009 schweitzer 2010 sandpoint 2011 schweitzer 2011 april 1-2 6-7 2008 sandpoint creations department cornerstone natalie nonprofit partnership 2012 march 8th journal january street wall -market watch 2012 latest events 2013 schweitzer results cycling 2013 march soon 24 idaho photo details deadly raised including kidneys liver organs destroys buildup slowly muscles white small population nervous central blood eyes cystine body’s henry november interestin helpsponsors cystinosiseventsabout organizationhow diagnosed united “cystine” accumulate acid amino children worldwide scarce nonexistent researchers attempt sooner physicians talking parentsattended california family started 22nd resortin 21st $623 funds homeabout 2008my advancements financial incentive industry pharmaceutical termed orphan private sector complicated lead prevent treat market medications sandpoint

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cystinosis

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approves fda 2012 news foundation

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approves fda 2012 news foundation genetic deadly disease 2011 october awards grants cure watch fanconi syndrome hank sturgis henry sturgis january journal patients wall street -market drops events april 30th latest awareness non-profit raises money 3013 procysbi hours treatment corneal hcl cysteamine slow release medication crystals