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Title

Batten Disease Support & Research Association

Description

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Batten disease is a rare neurological disease that currently has no cure. We are here to:

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Connect with BDSRA
Latest News
Upcoming Events

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CONFERENCE IN MUSIC CITY A BIG HIT!
BDSRA Practice Guideline RFP Open until September 1, 2013
$1M in Batten Disease Research Funding Awarded through BDSRA Research Funding Collaborative
The Lysosomal Disease Network’s 10th Annual WORLDSymposium™ 2014

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Latest Tweet

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upcoming practice latest support news $1m guidelines awarded events conference

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news $1m guidelines awarded events conference check great symptoms initial guideline talk open rfp connect contributed city music september big attended facebook twitter participated tweet seeks contact map services programs donate privacy policy 43215 mfrazier@bdsra 448-4570 road columbus dublin organization 1175 event worldsymposium™ development diagnostic fund doctor  bdsra collaborative february annual 10th network’ lysosomal management hear news clinical trials research page research clinical memorial facebook centers batten news ncl publications request donation faqs donation get help make research how proposal bdsra’ publications testing conference bdsra batten family stories links disease faces homewhat association family websites programs equipment centers excellence annual services medical help family services how involved annual membership where efforts bdsra’ promote families  we strategy listen child center raising challenges discuss cure neurological news latest news the store latest goes bdsra money illuminator about bdsra mission us financials reporting media staff contact bdsra chapters boards partners sponsors for statement history excellence

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disease

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bdsra batten

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bdsra batten funding latest

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funding latest $1m 2014 2013 tweet open september awarded collaborative network’ 10th worldsymposium™ rfp lysosomal annual big  we connect cure neurological support association news upcoming city practice music conference events guideline